how do social organisation work for hemophilia patients who need special care and attention
Answers
Answer:
To optimise care for patients with haemophilia, more is required than simply the prompt treatment of an acute bleed; to improve patients’ health and quality of life, the management of patients with haemophilia should also encompass psychosocial support, the prevention of bleeding and joint damage and the avoidance or management of disease and treatment complications such as inhibitor development or the possibility of blood-borne infections1. There is also a growing recognition that patients with haemophilia exhibit significant heterogeneity in terms of their clinical phenotype and response to treatment, and it should be remembered that, “there are not diseases but only patients”. Hence, to optimise treatment, the management should be considered on an individual basis and tailored to each patient and his needs.
Answer:
Contact sports — such as football, hockey or wrestling — are not safe for people with hemophilia. Avoid certain pain medications. Drugs that can aggravate bleeding include aspirin and ibuprofen (Advil, Motrin IB, others). Instead, use acetaminophen (Tylenol, others), which is a safer alternative for mild pain relief.
The best way to treat hemophilia is to replace the missing blood clotting factor so that the blood can clot properly. This is typically done by injecting treatment products, called clotting factor concentrates, into a person's vein.
The three main forms of hemophilia include the following:
Hemophilia A: Caused by a lack of the blood clotting factor VIII; approximately 85% of hemophiliacs have type A disease.
Hemophilia B: Caused by a deficiency of factor IX.
Hemophilia C: Some doctors use this term to refer to a lack of clotting factor XI.
Explanation:
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