Imagine you somehow developed a chronic disease. How would you gather information that would help you cure your illness? How could you tell if the information you had gathered was accurate and credible?
Answers
Answer:
I would check with the societies/organizations that were dedicated to this particular disease, but I would double-check who started the organization, too. I know of one where the website support site for a disease was started by the pharmaceutical company that made drugs for it, so all the advice was to take their drugs. :-P
Finding forums with other people who have this condition is a must. If you find out information on a forum, try to ask the members where they got it, if they have any evidence/studies to back it up.
Depending on how well studied the disease is, doctors may or may not be helpful. Typically, the people in the trenches - those with the disease - are much better at dealing with the practical day-to-day issues and solutions. Doctors are typically better at giving tests.
And if you are interested in current research, put in the disease name and 'abstract' in a search engine, possibly a date or other terms you are interested in. That will usually find your links for research abstracts, at least.
Explanation:
hope it helps:)
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