What is the main ethical consideration when conducting research into people with memory loss?
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Before anyone participates in a study, they should have given their informed consent to the researchers or doctors in charge of the study. Giving informed consent involves more than just accepting to take part as the decision must be based on a full understanding of what is involved. The information concerning the study should be provided by the organisers and be understandable to potential participants who should be given time to take in the information and ask any questions. For this reason, informed consent should be seen as a process rather than simply a document to be signed.
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Potential ethical issues with research involving people with dementia include respecting their abilities to make decisions, securing consent to participate from proxy decision-makers (e.g., family members) without directly seeking assent (i.e., agreement) to participate from the person with dementia (Slaughter et al., ...
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