‘It only takes a spark to get the fire going.’ In what way can a single person or act make a positive different? Write your views in about 80-100 words.
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Answer:
If you follow my Eye Believe in Miracles blog, or my social media posts, or bump into me anywhere at any time EVER, you likely know that I am on a mission to reverse the blindness of my two sons and thousands of other kiddos. I am not shy about it, heck, people in my hometown may very well be ducking behind coffee counters when they see me barreling in to refuel: I tend to talk about my work a LOT. I’m cool with owning my obsession for my journey because when you are trying to cure a very rare disease, one thing you don’t have is a multitude of resources. And in our case, we don’t have much time either. I talk to as many people as I can to find connections to help move our mission forward, and I have to do it quickly.
My boys are blessed to have a little bit of vision remaining. They had a little more at birth, but the retina cells are dying everyday… so at 15 and 12, they only have a bit left. If I sit back and do nothing, they will likely be near darkness by high school graduation or their first year on a college campus. What would you do?
crbf
I can tell you, as I tell everyone, that I am not sitting and waiting. I am leading a team, the Curing Retinal Blindness Foundation, to stop the cells from dying off and ultimately restore the vision. Think I am crazy? It’s okay, some folks would agree with you. I mean seriously, it is a bit crazy to take on fighting a rare disease with no prior training to do so! But, instead of listening to the naysayers that said it would be impossible, I learned to surround myself with folks that have the tools and expertise that I need to get to the finish line: the cure. I am quite blessed to have found tons of folks helping me along this journey… allow me to introduce you to a new favorite group of people that are just as committed as I am to Get.